Friday 22 October 2021

HERE WE GO AGAIN

I must confess that this joke did make me smile,  I hope it does you too.  Once again here we all are facing shortages of one thing and another with worse yet to come we are told.  The petrol one was ok for us, we have to be honest been very fortunate.  Plenty of petrol, no queues and plenty of fruit and veg at our stores.   We are not sure if we will continue in this way or if we eventually will get hit as other parts of the country have been.  I just hope we can ride all of this out but not so sure with France threatening to blockade the ports.  Time will tell.  Anyway I thought it would be good to begin this blog with something that made me chuckle.


DENERVATION


Once again after speaking to my specialist I have been informed the my ph levels remain between 30 and 35 so not bad for somebody who should have died 11 year ago.  I do hope that when everything is collated re this trial that this is offered to more and more patients.  Though quite a complex procedure and yes painful I have never once regretted it so I do hope more of my ph family  benefit from this and remain in a stable condition too.  All in all my ph is well controlled which is for me as good as it gets. 


TIME AWAY


We did manage to get away for three absolutely splendid nights at a first rate hotel with the most fabulous food last week.  We went with a couple of good friends and did not seem to come up for air whilst we were away.  I must confess that once we got home I had a much deserved resting day.  We walked around Tarn Hows, went on ferries, checked out once again Beatrix Potters place and took a boat trip around Lake Windermere.  We shopped in Bowness and went to look around  Wray Castle.  We are still very cautious and stayed as far away from people as and when we could and wore masks most of the time.  


Just before we left I realise that my walking trainers needed replacing.  There was very little sole to protect my feet from the cobbles on the old roman roads around here and I did not wish to walk in my walking boots.  Clearly a new pair were needed.  I cannot begin to think about how many miles those trusty walking trainers had taken me but they had done their job well.  A walk around some of the many outdoor pursuit places in Ambleside and I came across the perfect pair.   Gortex lined -  a must, a good sole to cushion my feet and the type of fastening where I could easily lock in the laces half way down the shoe.  Merrell was the one I opted for and they were immediately comfy so I was set to go on my walks again without hurting my feet. 


FACING UP TO REALITY


Yet once again on our return we had to deal with the old problem of the guy from the apartment block where we used to live, he was to stand in court to answer charges for his harassment towards Colin and to some degree to myself.  As we always thought he would, he pleaded guilty at the final hour so really we were not needed in court.  We did however want him to see us there to let him know that we were not intimidated with his threats and to see him get his just punishment.  The judge was rightly hard on him when talking to him and left him in no doubt that should he go before that court again with similar charges his punishment would be very severe as this was his second appearance on harassment charges.


He did hand a letter of apology to the judge and said he wanted to give it to Colin but was not allowed to because of his bail conditions.  We did not see the letter as the trial has not finished yet but Colin said he does not wish to see it anyway.  Generally we are people who can have differences with people but once it is over it is over, such as the last time he was in court and sentenced we shook his hand and said it was over and we should all get on with life, but not this time.   Enough is enough and we want nothing more to do with him, although in four weeks time we will meet him in court once again when he is sentenced.  He should have let sleeping dogs lie after last time but no, he is one of those bullies who when he thinks nobody else can see what he is doing keeps coming up for another nip.  I know one or two others like him and generally once I find out what they are, steer clear of them.  


One sad fact of this is that a lovely lady who held the chair on the committee has had enough and sold up and is ready now for moving out.  All because of this person.  


GENERAL


Izzy is away on a trip with school.  Got loads of pics of her abseiling and making canoes etc.  We will collect her when the coach drops her off today and are looking forward to hearing her tales.


All still going good with the wedding plans.  Colin needs to get his suit fitted at some stage but I also want him to get off for a few days before 18th November when the court date is set.  Still nobody has seen my outfit for the wedding except for the friend that went with me to choose something.  It is sitting nicely in the spare room next to my daughters wedding dress.   


I have two dates this month to see orthopaedic specialists.  One is here where I live and the day after one is in Sheffield where I attend my ph clinics.  This one is to talk me through quite what will happen if surgery is indeed deemed absolutely necessary.  I already know there is a high risk of death, stroke etc or not regaining the use of whatever pulmonary pressure I have now but we will need to weigh up the quality of life and make that decision together.  It is just a bummer that not only do I get such a devastating disease as the rare pah but also issues with my bones too!  


We both have colds and did do the covid tests just to make sure nothing sinister was lurking but no, all clear for covid which is a relief.  We still wear our masks and still do our best to use the two metre rule but this is quite difficult as others do not seem to be bothered.  Me and Colin attended a dinner for a village somewhere in the third world where nobody wore masks either to enter or leave.  I won two raffle prizes which I was shocked at as I rarely win anything.  The prizes were both bottles of wine and wether good or bad wine I have no idea as I do not drink but a nice thing to win anyway.  


Right time to get off this machine as I know Colin is itching to use it.  I have now got a mini iPad as it is so light to hold but for things such as this blog I need the big machine to type on.


Thank you to those that messaged me to see how I am as not much input fro me on facebook for a while.  All to do with technical issues I can assure you, I am not doing too badly at all.


Tons of love to you and please write me a line or two if you can.


Carole xxxx




2 comments:

  1. Nice to read that things are going ok, hopefully your old neighbour will get the sentence he deserves.
    T.

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  2. Another interesting and informative blog. How lovely to be able to get away and, I suspect, much needed after all the court trauma. I hope your health keeps stable and maybe improves a bit with your treatment. I am persevering with the Selixipag and now have no side effects whatsoever. Can't wait for the trial to be over to find out if it is the proper drug. I wish you well and look forward to your future blogs.

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